Childhood Cancer our journey! Ewing's Sarcoma


February 1st 2007 our lives were changed forever. Our 15 year old daughter Nicolette (Nikki) was diagnosed with ewings sarcoma. For about 6 months Nikki was complaining of lower back pain off and on. The pain would go away with Motrin and sometimes be gone for a few weeks at a time so the doctor said to stop doing sit ups (she did 100 a day) and not to run on the treadmill and see what happens. Then on Feb.1st she said the pain was so bad she can't sit in the chairs at school. That morning I took her back to the doctor and she sent us for a MRI that day. A few hours later the phone rang with the doctor telling us to pack a bag and get to Children's Memorial Hospital that something was seen on the MRI. Since that day she has had several procedures, scans, MRI, and biopsy. Due to the location in her spine it is inoperable. She has completed 9 rounds of chemotherapy out of 14 all inpatient and she has just finished 31 radiation treatments. She loves shopping, listen to Bob Dylan, and horseback riding. Her older sister is her best friend and as she says her 2 younger sisters are annoying. Nikki is an inspiration to all of us with her strength and her constant negotiations with the doctor to move chemo for a week or two due to what she calls more important things. They gave in this time so she could start her Junior year but it's going to be the last time. As with all these amazing kids life has been a roller coaster this past year in and out of the hospital, low counts, fevers,complications from radiation and the list goes on and so do we! Our kids give us the strength to get out of bed everyday. They have every reason in the world to complain and stay in bed but all they care about is getting to the mall or going to school that's the last thing they want to do is lay around another day. God has given us our special ANGELS to teach us all a lesson. Live everyday to it's fullest and never give in because they sure as heck aren't going to :-)







Channel: People
Uploaded: December 24, 2007 at 1:50 pm
Author: gonikki501

Length: 00:04:44
Rating: 5.00
Views: 3788

Tags: sarcoma ewing's cancer childhood

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Video Comments:
saskeez (October 17, 2008 at 9:09 pm)
that was lovely, i had ewings in 2004-05 still go bac 4 scans but 6 monthly now. i 1st had it in my head then they removed my collar bone.i was watchin ur vid n it made me cry. was really nice
cookiesnmilksinger07 (October 14, 2008 at 1:02 pm)
you are such an inspiration. I have been fighting Rhabdomyeosarcoma for a long time now and it hasnt stopped me yet. Check out my videos too (I sing)
KBkittykat (August 31, 2008 at 5:07 am)
Hey nikki,I'm Kahlia. You might know my family from my carepage. I think your mum and my mum know each other and talk to each other through the care pages. I am thinking of doing one of these for myself. anyway all my love
kahlia
secretgarden21 (August 3, 2008 at 10:49 am)
OMG i know exactly what u mean =). it all seems like it went so quick... even though my treatment was about 10 months long
secretgarden21 (August 3, 2008 at 10:48 am)
i know exactly what she went through and how shitty it all was =(. I too had Ewings, except in my kidney (extremly rare) when i just turned 14. It was really tough, but has taught me what my real values and prorities in life are. and i have recently been given the 'all clear!' good luck to Nikki! She will be in my thoughts alot =)
cod4fanatic1992 (July 22, 2008 at 6:11 am)
well, i had this same disease, although it was in a different spot. I threw up over 200 times. but in a year from now you will think your year with cancer seemed like a week.
sapo8582 (July 18, 2008 at 9:10 am)
your video is breath taking but u now watH ure better then eany thing else beacouse ure strong and u went every chalenchge god gave u ure a role model ure amezing dont forgett tath.love u.ur frend from jax
sapo8582 (July 18, 2008 at 8:56 am)
im a mother and i now the pein all of u are feeling i promise u if some day i win the lotto i will give u something maibe everithing i want every childring to be happy. they dont know waths going on they disorve better they are little angels u just dont now it yet;;;
spo3434 (May 26, 2008 at 12:33 pm)
Nikki,You are the Epitome of the Human Spirit...
imoveteeth (May 3, 2008 at 7:26 am)
Dear Nikki,
My prayers are with you. My life too changed in 2007 when I was diagnosed with a large sarcoma in my pelvis. I've bee through much of the same things you have, so I know how tough it can be. Keep fighting - its worth every moment. You will be in my thoughts.
Jay

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